Things have settled down health-wise to a manageable level since my last post. I have cut down on a lot of things I used to do around the house and either get someone else to do it or do it in a way that puts the least amount of stress on my left arm and that has helped. It means leaving the carpets unvacuumed sometimes or having to wait till there is another adult in the house to help me push the bed to look for something that has fallen behind it. It is a lesson in patience; something I have never been good at.
The appointment with the Neurologist was one of the most disappointing medical encounters I have ever experienced. He did not take a medical history or even ask how I was feeling. Instead, he had decided my symptoms were being caused by stress and anxiety and prescribed a drug which amongst other things was an anti-depressant and had strong sedative effects. It was supposed to help with nerve pain. No amount of explanation on my part that I had a son with special needs that needed me to be responsive at night convinced him that this was not a suitable drug for me to be on. After arguing my way through the hour long appointment, he finally agreed to talk to his boss about using a technique used to measure brain activity in stroke patients. He promised to get back to me in a few days, but I haven’t heard anything back in the two weeks since the appointment.
Out of options, I finally decided to to back to Wellington and see the Vascular Surgeon who did the original scans and MRI’s on me when I was first diagnosed in 2004. It seems like a better option than going to a new doctor for a 2nd opinion. My medical condition is so complex, it would take a new doctor weeks to gather all the relevant facts in order to give me an informed opinion. That appointment is next week and I am staying in Wellington for a few days afterwards to catch up with friends.
Yesterday I took Jacob to watch the Cricket Worldcup Semi-final between New Zealand and South Africa. I had bought the tickets months ago and didn’t want them going to waste, so took on the challenge of convicing Jacob to go along with me. We only stayed for the 1st three hours and left after the rain started. That was all I could handle tiredness-wise. But I am glad we did it. Jacob might not have inherited a single cricketing gene from either heritage, but maybe a love of the game can be taught? Or maybe not, given he spent most of those three hours glued to his iPod…..